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Spina Bifida Association of Western Pennsylvania

YARD SALE

Saturday, June 29th
8 a.m. to 3 p.m.
SBAWP
1158 Dutilh Road
Mars, PA 16046

- Come and shop!
-
Donate your unwanted items to SBAWP to sell
-
Buy a table for $15 and sell your own items (no clothes for sale, please)
-
Invite your family and friends

Drop off items between June 24th and June 28 from 8 a.m. to 4 p.m.

Call 724-934-9600 for more info

Click on the Spring 2013 Edition of "Kaleidoscope" for the latest SBAWP news and resources!

Our Mission
The Spina Bifida Association of Western Pennsylvania is committed to improving the quality of life for people with spina bifida and their families by providing a continuum of support services, education and advocacy.
Learn More About Us

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National Rehab has launched a Partners in Care program.  It is available to all individuals with spina bifida.  It's a personalized service and you won't be disappointed. 

 

Check our their April Newsletter by clicking here. 

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Having Trouble Putting
Food On Your Table?

Many people are
now eligible for
SNAP/food stamp
benefits because of
guideline changes!

Call to see if you
are eligible today!

(412) 431-8963
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Celebrating Over 40 Years

The Spina Bifida Association of Western PA (SBAWP) is celebrating 41 years of service and support to individuals with spina bifida and their families. What started as a parent support group has now become nationally recognized organization with services that span a lifetime.

Learn more about SBAWP and its programs and services in the pages of our web site and stop back often to keep updated on what is happening within the Association!

Fifth Annual Summer Festival

Save the Date - August 10, 2013

Live music performances by Midlife Crisis, Southern Comfort, Theradancers, and the North Star Kids. (and others)

$10 per person, children 5 and under free
724-934-9600 for more information or register online
.

Thanks to our 2013 Corporate Sponsors (as of May 31, 2013): 

Federated Investors Foundation * Altar TV

Coloplast * Chuck Foley Memorial Foundation * Fifth Third Bank * First Niagara Bank Foundation          Fort Pitt Capital Group * Louis Anthony Jewelers * NexTier Bank * Western PA Laborers Building and Defense* HarKel * Chubb Group of Insurance Companies * First Choice Mortgage Services *Settlements, Ltd. * Quest Energy Solutions * Tudi Mechanical Services* Berkley Mid-Atlantic Group

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SBAWPeople Profile - Elizabeth

TheraDance Class

BluePrints graduate Elizabeth dancing with the TheraDance class

Monday, March 18, 2013 was a day I will never forget. That was the day when my 7 year old daughter, Elizabeth, proved to us that she would never accept the limitations of Spina Bifida. Instead, she stepped "on stage" and performed her little heart out at her first dance recital.

Elizabeth was born with the myelomeningocele form of Spina bifida, hydrocephalus, and symptomatic Chiari II malformation. After she underwent several major surgeries and lengthy hospitalizations my husband and I resigned ourselves to thinking that her physical limitations would make it virtually impossible to participate in a dance class. This was particularly difficult to accept because Elizabeth has always loved music and moving to the rhythm. Her former PT, Pat Smith-Martin, recently commented, "I can remember this kid shimmying before she could even sit!"  And now, after 7 years of hard work in physical therapy, our beautiful daughter was given the opportunity to "get her groove on."

Elizabeth would never have had this opportunity if not for the development of an exciting new "Theradance" program created by her current PT, Jamie Barnhill, DPT. I can’t tell you in this brief message how much this has meant to our family.  I can only hope that by spreading the word, more children will be able to experience the magic and excitement of performing for their family.

- Melanie Dragovits

Watch the TheraDance class performing to "Call Me Maybe" 

https://www.facebook.com/video/embed?video_id=10200859181546872

TheraDance is a group physical therapy program designed for children with physical limitations, such as impaired balance, body awareness, coordination, flexibility, strength and endurance. The program is offered by the Center for Independence at Children's Hospital of Pittsburgh of UPMC at their Pine Center location in Wexford. The sessions are 10 weeks in length and culminate in a choreographed routine to music. For more information, call the Center for Independence at 724-933-9286.

Want to help SBAWP Programs serve people like Elizabeth?  Make a donation by choosing the "Donate" button in the upper right hand corner of this page, or come to the 5th Annual Summer Festival presented by Seubert and Associates (see above). 

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Sepsis Prevention in Patients with Spina Bifida

Sepsis Prevention in Patients with Spina Bifida

Wednesday, June 19, 2013
6-8:30 p.m.
Four Points by Sheraton Pittsburgh North
910 Sheraton Drive, Mars, PA 16046
The evening will feature a buffet-style 
dinner with two presentations
Sepsis and Urology- 
presented by Dr. Michael Ost
Sepsis and Pressure Ulcers- 
presented by Dr. Brad Dicianno
Register by Wednesday, June 12th
Click here for registration
Event sponsored by:
 
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Camp Rock

Click your session to register! 

Youth/Teen Camp- July 5-12, 2013
Mini Day Camp- July 8, 10, and 11, 2013
Adult Camp- July 13-20, 2013

SEE YOU THERE!

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Firefly Tumblers

For Firefly Supporters of All Ages!

24 oz double walled tumbler with screw on lid and straw 

Only $8

 Pick one up at the SB office or at the next retreat!

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Spina Bifida Support Group

 

 

Join us once a month for a support group for families and caregivers.  Sponsored by National Rehab and the SBAWP.   You can find more details at the support
group facebook page or by emailing support@sbawp.org

                     


Childcare is provided and the kids have a GREAT time!

Childcare is provided, however, we ask that you please call the the SB office at 724-934-9600 to request childcare. If you do not, we may not have enough volunteers available.

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Hey, there's an app for that
Research study

Hey, there's an app for that!

Are you interested in participating in a research study for enhanced wellness?  Click here for more info!

Must have spina bifida and be between the ages of 18-40. 

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SBAWP Resource Library

SBAWP Resource Library

Looking for a good book?  Need more information about spina bifida, or information about services available to individuals with disabilities?  Check out SBAWP's online Resource Library  http://astore.amazon.com/wwwsbawporg-20 . 

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