About Our Organization | The Association of Western Pennsylvania

The Spina Bifida Association of Western PA (SBAWP) is a nationally recognized, charitable, nonprofit provider of information and direct services to children and adults with spina bifida and their families. The organization annually serves nearly 1000 children, teens and adults living in 28 counties within Western Pennsylvania and portions of New York, Ohio, and West Virginia.

SBAWP was originally formed in 1969 as a parent support group, and now offers a variety of programs and services including camps and retreats, a Family-School Partnership program, the Gatehouse Prevocational and Life Skills Program and Adult Community and Support Services. Through its programs and services that span a lifetime, the SBAWP gives individuals the resources, self-confidence, and practical skills to lead full and active lives and become contributing members of the community.

The Association corporate office is located just south of Cranberry Twp., PA and employs a part-time and full-time staff of trained professionals as well as administrative and support personnel. The organization is governed by a board of directors comprised of members of the community, parents of children with spina bifida and business and medical professionals. Programming and operating costs are funded by individual donations as well as Federal, state, corporate and private grants.

Program & Services

The SBAWP offers a wide variety of programs and services that address the needs of individuals with spina bifida and their families. We place special emphasis on offering age appropriate programs and services that support each individual through their developmental milestones. Through every step of life’s journey, a person with spina bifida or other related disabilities can depend on the SBAWP to provide them with exceptional services and supportive programs that will help them navigate through their limitations and build on their strengths. Please take a moment to view all our programs and services to the right. Should you have any questions please feel free to contact us ProgramInfo@sbawp.org!

in the United States,Spina
occurs in 7 out of
every 10,000
live births.

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DonateApproximately $.91 of every dollar you donate to SBAWP goes directly to programs & services.


What is Spina Bifida?

Spina bifida is an abnormality of the nervous system that occurs in a baby’s development during the first month of pregnancy. Most textbooks define spina bifida as a neural tube defect or a gap in the fusing of the neural tube that encloses the spinal cord. While a neural tube defect indicates a diagnosis of spina bifida, it is only part of what is a total nervous system disorder. The number of children born with spina bifida is approximately 1 in every 1500 births.

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“1 in 1500 children are affected with Spina Bifida,
learn what you can do and how we can help”