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Collection of Information

The Spina Bifida Association of Western Pennsylvania does not collect personal information without your knowledge during your visit to our Web sites. However, the Spina Bifida Association of Western Pennsylvania does at times ask that you provide us with personal information while online. The type of information we collect typically, but not always, corresponds directly with the service you request. For instance, you can make donations, when requested you can offer your thoughts, opinions, concerns, ideas, personal experiences, questions and/or suggestions to our resources and programs or you can request that a resource be sent to you directly. As a visitor, the personal information you provide may also be used to improve the usability of, and information available on, our site. In other words, at times we will ask you for more information, beyond just your name and contact information, than is needed to facilitate our response to your specific request. Your provision of such additional information is your acknowledgement that you consent to our use of such information to better serve you, our visitor, and others coming to our sites.

The Spina Bifida Association of Western Pennsylvania will not sell, lease or rent its mailing list or release any of your confidential information to any outside organization or individual except as agreed to by you, or as permitted by law or required by law including but not limited to statute, regulation, court order, subpoena, search warrant, in the course of a legal proceeding or in response to a law enforcement agency request; requests from the IRS, state or local taxing authorities; to enforce our Terms of Service, or site rules; or to protect the safety and security of our visitors and our sites.

In the case of donations, a donor’s name may appear in the Association’s publication(s) as recognition unless otherwise requested by the donor. In those instances when a donor’s name appears, neither the amount of the donation nor any personal contact information will be published.